Sunday, June 20, 2021
Deepika....well...
Saturday, June 19, 2021
Happy days
Tuesday, June 15, 2021
THE SPECIAL NEEDS CHILD
The
transition from person to parent is among the most beautiful milestones. For
some folks it is surrounded by pregnancy and birth complications and the
outcome is a child with special needs. The special needs of this child are in
the realms of medical, therapeutic, emotional, educational and vocational.
Special needs children have diagnoses of ‘high risk births’, neurological
disorders, cerebral palsy, autism, sensory disorders, muscle and bone
disorders, mental retardation and metabolic conditions. The first few years are
spent only getting the diagnosis, prognosis and treatments streamlined. While
every kind of professional expert is now available in India, the process is
never easy. First- no matter what the condition parents spend years looking for
a cure. The professional who is honest enough to declare the condition
incurable (but treatable) is promptly dropped and parents usually hunt far and
wide for anybody who is non- committal about the prognosis (let’s see what
happens, we can try, start this and see) or straightway promises the moon (of
course, I will cure him/ her, nothing is wrong with him/ her).
Its
important that parents accept the diagnosis and get to work on helping their
child as soon as possible. Parents should do a thorough search and find a
professional who is known to be an expert in the field. Find two- no problem.
Preferably they must be from institutions of repute. Pay attention to the
process of assessment- it should be thorough, unhurried and by a team of
experts in particular domains. This may take some resources of time and money-
but believe me- its completely worth. Once the expert/s have given you their
opinion, tell them to give a clear plan for the coming years and suggest
professionals nearer to your area to implement these plans. Collect all
reports, prescriptions and file them properly. Upon coming back home-
coordinate with a pediatrician who has time and inclination to be a ‘çase manager’
to support you and monitor outcomes. And put your head down and get to work.
Connect with other parents with similar difficulties and be alert to new trends
in management- take time to discuss with your pediatrician about it. Every few
years you can approach the institutional expert for a review.
Bringing up
a child with special needs is definitely challenging. But a lot of the
challenges are similar to bringing up someone without these needs- like it’s a 24/7
job with no holidays. It has good days and bad. You have to worry about the
health, safety, happiness and long term stability of your child. The major
difference is that the world is not adapted to provide the special needs- so
you are going to spend lot of time doing research, being an advocate of your
child, spending money, worrying if you are doing right. There are all kinds of
facilities- but parents you are literally left HOLDING THE BABY and the BUCK
STOPS AT YOU. Your effort makes all the difference.
So while
you are at it- also remember that you need to remain alive, healthy and in a
mindset to be able to complete your responsibilities ably. Pay attention to
your health, maintain fitness and learn stress management.